Tuesday, May 26, 2015
Monday, May 25, 2015
We invite you over to our house between 12 and 3 on Monday, Memorial Day. We have some finger food and mainly want to have the opportunity to fellowship with those who have been praying, sharing and following along with Rachael's journey.
So Monday 5/25 from 12 till 3 we would love for you to drop by. No need to feel you need to spend the whole afternoon, we are well aware that there are lots of things going on.
Burt and Nancy
4215 Tee Road
Saturday, May 23, 2015
Has given my heart a change of mood
And saved some part of a day I had rued.’
Rachael's Aunt Mary would run Rachael through a nightly routine when here and often over the phone. Rachael is soft, she is safe and she is quiet and she is comfortable and she can now rest her peepers.
Friday, May 22, 2015
'...the wilderness has shut them in.'
Rachael's blood pressure is very low. To increase takes harsh drugs that will cause damage to smaller veins in the arms and other sites normally used for an IV. So a Central Line is placed via the jugular vein to down near the heart so that blood samples can be drawn and drugs given without hurting smaller veins. With the low bp, it is not possible to get blood samples via an iv. The IO is not in a place to allow drugs to go. It is good for hydration. So here is where she is at:
1. The Central Line failed as the line hit some type of an obstruction, blocking the pathway. Probably a contracted muscle or scar tissue.
2. The next step is through the femoral artery in one of her legs. It was found that she has one blood clot in each leg blocking that option.
3. A third option is to go in under the clavicle, but given her condition and blood history, they decided to not take that option.
So she needs the drug to raise her BP but all 3 options are not feasible.
Prayer - That her B P raises on its own or they get one of the options to work.
Right now, like Israel in the wilderness, she is out of options. We ask for prayer that God will part a small sea and provide a way to get the line in.
Thursday, May 21, 2015
Rachael has fallen into septic shock. This is a severe infection. You can read up on it Here.
Earlier this morning she vomited and had 2 more events during the day. We were not able to get accurate vitals from her once she became diapheretic at which time we called 911. In the ambulance her heart rate had jumped to 180 and her BP was in the 60's and dropping. Breathing became shallow and rapid as the EMS guys dillegently worked to stabilize her. They were unable to get an iv in so they resorted to an IO which is a radical method of placing an iv directly into the bone.
She is being given anti-biotics and fluids and is in and out of consciousness. She is headed to the ICU and will remain there for an indefinite period.
She has never been in more danger since the accident and we ask for your fervent prayer. There is so much for all of us to be praying for at this time with the loved ones in several families in the local body suffering severe and deadly illnesses. Please add us to the incense of petition from the saints to our Lord of all those facing these medical trials.
Can you imagine doing this without Christ? When we are weak he is strong for us. We are weak. We pray for Jesus to be glorified and thank Him for His strength.
Thursday, May 7, 2015
This round stinks. Tonight, while speaking with Hanna, she stated that she is not worried, God has pulled Rachael through other hard times and he will do it again. That was encouraging to hear. Through all of this we need to remember, Jesus is Lord. He is in charge of it all.
Rachael had shown improvement later yesterday and into the night. She was put on a full liquid diet which includes colored liquids, yogurts, soups and puddings. She ate 2 small containers of chocolate pudding last night. This morning, upon getting her first sip of coffee, she stopped sipping and vomited. It looked as though the pudding did not get digested. Since this morning she has only had 8 oz. of broth. She is not hungry. Later this evening she spiked a 102 fever.
It is not a good scene here. Rachael is being fed via a PIC line with nutrients supplied to her in a bag. They have to check her blood sugar twice a day and also check blood chemistry to assure us all that the nutrients are sufficient for nourishment. She has not had even a small meal in 12 days. She now is yelling out with what is left of her vocal strength. She has been given valium which did nothing for her and now diladid. The diladid did seem to calm her down. Nancy is a wreck and does not want to go home. It was quite a blow as we thought last night that she was on her way to getting back to the new normal. Then she was sick this morning.
April was a whirlwind. Rachael had been in the hospital following a severe blockage. She returned home and within a few days, Nancy accompanied Hanna's class on a great missions trip to North Carolina. It was an incredible blessing and a refreshing time for both of them. They were in the mountains for a week working with homeless adults and disabled kids with their families. The Lord blessed that window of time for the 2 of them to have a respite from these past 9 months of near monthly hospital crisis. The day they returned, Rachael took ill.
Since August 11th, Rachael has not been out of the hospital for more than a month at a time! She has been through so much: Subtotal colectomy, separate surgeries on her thighs for contracture release, a girdle stone surgery, before she would be over one procedure, she would be slammed with another. Yes it takes its toll on her and all of us. It is just not easy. Yet, it is very true, our God sustains us. Jesus is alive and His word gives us a hope, not in the situation with Rachael, just a sense of hope for a better time. We do know that is coming for all of us that believe in His name. During times such as these we need to remember who we are in Christ and what we are in Christ.
Hanna was so simple in her response tonight when I asked if she was handling this ok. Straight up remembering God's work so far with Rachael and banking on what is going to happen. Yet, whatever is in store, we are willing to walk the walk. It is not easy, we are going nuts, the stress is high. It has been a long hard slog these past 9 months. I lose it on the staff on occasion and feel such the idiot for doing so. We make up and move on.
Gotta remember. All the magnificent things our Lord has done. All the lost that do not know what is there for them. Gotta remember. All the people we have met through Rachael, some coming to Christ by a seed planted from meeting us. Gotta remember. All the folks that have said what an encouragement they feel seeing us through this season. Gotta remember His works, His mighty hand! He is the God who does wonders. Gotta remember that when we are at our weakest, we are strong without trying.
Continue to pray, please pray much.
Burt and Nancy
Sunday, May 3, 2015
Saturday, May 2, 2015
Well as we narrowed down the symptoms to try to find a resolve to Rachael's problem, we have found it will not currently require surgery. This made us very happy. However, she still has problems with her stomach bile. So they are going to put in a PIC line to be able to give her the proper nutrition that she needs and in so doing , buy time to figure out what the problem is. It could be a simple intestinal infection. Once we have eliminated that; hopefully that will resolve the issue, but if not then we can move on to other areas of research. So please pray that this is simply an intestinal infection to be cleared up with antibiotics. Nancy, Hanna and myself ask you to pray for us.
Friday, May 1, 2015
Rachael slept through the Xrays. Pray that this can be easily taken care of.
Rachael had been cleared to go home today but early this morning she became nauseated. We are concerned about this and we will be talking to the doctors this morning to decide if it is truly a good idea for her to come home. She is still very weak, and has not eaten very much. We would be much happier if she were stronger before she came home.
Nancy is at the hospital right now and will be talking to the doctor this morning.
So Rachael is doing better, still weak. She began eating today with very small portions and will continue on this path until she is back to her normal intake. She did have her PEG tube replaced which she was not at all happy about. She is troubled by its presence and wishes it gone for good.
The tube has helped to save her several times.
We continue to learn about Rachael and how her body functions. Please continue to pray whenever the Lord lays us on your hearts.
Blessings in Him,